Community & Videos
OI Community
We believe in the power of community! Here you can share, exchange, and talk with the OI community. Or just check out some news and cool events!
We’ve put together a playlist of all the videos available on our website, including videos about mental health, social support, pain management, and more!
Learn About OI
Welcome to “Teens OI” an E-Health Program for Youth with Osteogenesis Imperfecta (OI)!” In this section, you will learn what to expect in the program, how to get started and how to set goals to better manage your OI!
Do you ever worry about your OI?
In this module, you will learn about ways to manage your stress, ways to feel good about yourself, and about psychotherapy.
Managing Symptoms
Explore strategies for managing OI symptoms, including fatigue and bone fragility. Learn about personalized plans, recognizing urgent signs, and using resources such as the OI Splint Kit.
Discover how to build and talk to your support system, including family, friends, and healthcare professionals. Learn to advocate for yourself, communicate your needs, and tackle challenges with confidence.
As you transition from pediatric to adult health care, learn to maintain your treatment, understand differences in health care systems, and acquire tools to support your autonomy.
Healthy Living
Here you will learn how to become healthier by exploring tips on how to Staying Active in your own way, Your Body In Action through physical activity, and get inspired by OI Athletes. Discover how Eating Healthy supports growth, and navigate daily challenges through informed Lifestyle Choices.
Learn how physiotherapy can strengthen muscles and bones, and how occupational therapy can support daily life. Discover tools and strategies to enhance accessibility, independence, and confidence while living with OI.
Here we offer practical strategies for managing the feelings that parents and family members may experience when their loved one has OI.
Newsletter
Subscribe to our Teens OI Newsletter
